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Posts Tagged ‘memory loss’

An Afro-American research study on Alzheimer’s Disease is underway at North Carolina Agricultural and Technical State University.

The study is being promoted as Keeping Memories Alive. This 2 year, national education and awareness campaign proposes to educate, and motivate to action, more than 12 million Americans through, multiple media outlets and grassroots community-based efforts. By combining the resources and talents of the Alzheimer’s Association, AARP, and research partners, the Keeping Memories Alive Alzheimer’s Project will become an effective model for translating scientific information to the public.

The Keeping Memories Alive Alzheimer’s Project team envisions a proactive and “brain-healthier” world.

African-Americans have a greater risk for Alzheimer’s Disease. To participate in the research study, you must be

  • African-American
  • 60 years of age or older
  • Male or Female
  • With or without memory problems

Finding genes that cause Alzheimer’s Disease and leaning how they interact with factors such as diet and the environment will lead to improved tools for diagnosis and better treatments for the disease.

To enroll, please call the Alzheimer’s Study Coordinators toll free at 1-888-248-2808 or 1-877-686-6444

What are the study facts

  • Participation is voluntary
  • All information is confidential
  • There is no cost to you
  • Your current healthcare or insurance will not be affected
  • Travel is not necessary
  • One may withdraw at any time
  • Research progress will be sent to study participants in periodic newsletters

Additional resources

 

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The stats helper monkeys at WordPress.com mulled over how this blog did in 2010, and here’s a high level summary of its overall blog health:

Healthy blog!

The Blog-Health-o-Meter™ reads Fresher than ever.

Crunchy numbers

Featured image

A Boeing 747-400 passenger jet can hold 416 passengers. This blog was viewed about 4,800 times in 2010. That’s about 12 full 747s.

In 2010, there were 51 new posts, growing the total archive of this blog to 71 posts. There were 377 pictures uploaded, taking up a total of 105mb. That’s about 1 pictures per day.

The busiest day of the year was November 8th with 90 views. The most popular post that day was My Grandmother Didn’t Remember Me.

Where did they come from?

The top referring sites in 2010 were facebook.com, shivere.wordpress.com, en.wordpress.com, mail.yahoo.com, and justacloudaway.com.

Some visitors came searching, mostly for angelversary poems, funeral photography, infant loss photography, infant death photography, and funeral flowers.

Attractions in 2010

These are the posts and pages that got the most views in 2010.

1

My Grandmother Didn’t Remember Me November 2010
5 comments

2

Funeral or Memorial Service for a Baby January 2010

3

Pregnancy & Infant Loss Photography January 2010
1 comment

4

Funeral Flowers February 2010

5

Helleborus Memory Garden Plant December 2009
1 comment

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After 12 years with Alzheimer’s Disease, this was the year Gram didn’t remember me when I visited her at the nursing home. My father said, “Mom, do you remember this girl?” She looked at me and said no. The toughest part was enduring her playful laugh as I sobbed in my hands. She was confused and amused as to why this strange girl was crying. I had a feeling this would be the dreaded moment because the instant we locked eyes, there was no spark of love, memories or the faintest feeling of familiarity. I was just another face.

Gram and I were close because I lived in her upstairs apartment, while she resided in the lower flat, for a few years. This was a symbiotic relationship because Gramps passed, leaving her alone and this gave me an opportunity to experienced some independence.

We spent a great deal of time together and became friends. She would often invite me to lunch (on her) and after some time, were regulars at Albert’s, Denny’s and Casa de Pizza.

When Gramps entered the nursing home, my Grandmother rearranged her schedule to care for him and he was not the easiest husband. She would help anyone who needed it and sincerely would give you the shirt off her back.

I loved living with her because she was never in a bad mood (or pretended). She would yell up to me, “Diana, do you want a cup of coffee?” Instant was her favorite, probably because she did not want to remember how to work a coffee maker. It was a nasty cup of coffee, but the company was great. Whenever I am offered an instant cup of coffee now, I gladly accept and memories of Gram flood my brain and the cup is savory and tolerable.

Gram always slipped me some “gas” money, bought  jewelry from the local department store or cooked hot meals for me, a poor college student. I miss those days and there will be nothing that comes close to replacing them.

I wear her jewelry with pride and share the story of her when these gems are questioned and admired.

Gram is a beautiful person inside and out.

 I sometimes think she is now living the life she should have all along, because of how Alzheimer’s has changed her. Unfortunately, Gram had a few regrets in life and would have never been caught dead wearing the hat below. I think Alzheimer’s Disease has given her a bit of freedom and playfulness she never felt comfortable expressing without the disease.

10 years ago, Gram was in the early stages of Alzheimer’s Disease during our wedding. I know she was a bit confused, but looked lovely. She knew how to play it off by saying, “Hi honey” or “Yes, Yes, I remember you”, but never did state their name.

If in the triad area, we will informally gather to papercraft memories, more info here

I created an Alzheimer’s Awareness Ribbon (magnet) for my grandmother. The ribbon color is purple, hence the purple cording around the edges and the purple paper in the background.

There are so many ways to create meaningful keepsakes of those we love dearly.

I love you Gram…..

Read my mother’s perspective…

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A Personal Story of a Daughter’s Love

by Rose Mecca

I feel very blessed to have had the opportunity to be a Caregiver for my mom, who was diagnosed with Alzheimer’s.  She lived with us for almost 8 years.  But I would have NEVER been able to do so without a caring, loving husband who was more of a son than a son-in-law to mom.  Generous siblings greatly aided us in her care by allowing down time by taking mom out for dinners.

 If a person is alone in this process called Care giving, the days seem never-ending.  I can’t imagine the trials and tribulations of the adventure without help.

 When mom first came to live with us, she had not been diagnosed with her illness.  Within 3 months, the unimaginable became reality.  My husband and I accepted the facts as they were and began making changes in our schedules and that of our mother.

 

I think one of the biggest mistakes in the beginning months was not asking for more help from family members and not expressing our frustrations and anxieties dealing with mom.  When we asked for help and were more open, the help was there.  The Alzheimer’s Association was also great in making us aware of the resources available to us.

 

Mom was still volunteering at our local hospital in the beginning, but over time became more and more difficult for her.  She could not remember the directions even with visual aids.  She could no longer follow simple directions at volunteering and had to be monitored constantly.  We suggested that she discontinue her volunteering and she agreed.  She was aware of her memory problems and it was so sad to see.  They loved her at the hospital and to this day tell us how much they miss her smiling face.

This move robbed her freedom while putting more responsibility on us to provide continual activity for her.  She has always had lots of energy but now it was in overdrive.  My husband devised activities for her such as, stringing beads, making 100 piece puzzles or sweeping the sidewalk around our house.  We simply could not find enough to keep her busy.  We were the ones getting exhausted while she never seemed to tire.  She then started to ‘shadow’ us so that when one of us left her vision, she wanted to know where we were. 

After 8 years, placement in a nursing home became necessary.  I cried and still cry when I think of that day when we placed her in her new ‘home’.  I know in my head it was right, but my heart cannot accept that fact.

For anyone in this situation, I would suggest communicating immediately with other family members and taking full advantage of help available for Caregivers.  The Alzheimer’s Association is a wonderful and helpful agency.  Don’t attempt to do it alone and never let your own health suffer while Care giving. 

Looking back, I never regret those years with mom.  Life is more peaceful now for us and for mom.  We do not worry about her.  She is still loved and believes that she is a volunteer in her new home and we all visit her very often.

Granddaughter speaks on Alzheimer’s

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